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肝胆相照论坛 论坛 乙肝病毒携带者维权 2009年8月2号 乙肝新闻大事件
楼主: 奔跑者
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2009年8月2号 乙肝新闻大事件 [复制链接]

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741
发表于 2009-8-8 21:53 |只看该作者
努力抗争!
这是一个机会,大家想想办法争取,.反对的声音始终不会停歇,中国的事情就这样.谁有好的办法,策划策划爸,

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742
发表于 2009-8-8 21:53 |只看该作者

回复 739# 的帖子

她是省级卫生厅的领导啊!还是大学教授!我很伤心,有多少高层领导都像她一样!我们乙人还有空间吗?还能三公吗?

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743
发表于 2009-8-8 21:56 |只看该作者
与她他计较干啥?
不知道形势的人,长不大的.

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744
发表于 2009-8-8 22:09 |只看该作者
每人每月向卫生部、国务院发一个明信片,要求乙肝患者权力!!

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745
发表于 2009-8-8 22:19 |只看该作者

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746
发表于 2009-8-8 22:29 |只看该作者
为了消除歧视努力吧。团结。
治疗乙肝,还是干扰素好!

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747
发表于 2009-8-8 22:49 |只看该作者

帮 顶

顶下  顶下
我不是医生  所给的只是建议

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748
发表于 2009-8-8 23:26 |只看该作者
我们的态度和行动将很大程度上影响这次事件的最终结果,大家还是要团结一心,为我们的权益而斗争!

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749
发表于 2009-8-9 00:48 |只看该作者
这算福音吗?后来卫生部并没有承认,现在社会有很多人提到乙肝变色的,国家应该是做大量的宣传工作,让人民知道乙肝并没有那么可怕,再取消体检乙肝项目,我们自己的的身体我有权力保护,不公开,乙肝并不通过呼吸系统传播的,如果再这样下去,让乙肝患者怎么活,不能工作又没钱做生意,不等于再逼上梁山吗?胡同志救世主快点开恩吧,我们现在过的不人的生活

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

750
发表于 2009-8-9 02:24 |只看该作者
http://www.heart-intl.net/HEART/030109/ALetterFromChina.htm

Critical time! Hepatitis B discrimination in China

Dear Madam/Sir,

I am a Chinese Hepatitis B virus carrier. I on behalf of 130 million Chinese Hepatitis B virus carriers turn to you for help.

Hepatitis B discrimination in China is very serious. The Chinese government is planning to enact a policy to permit kids who carry Hepatitis B virus to enter kindergartens. This policy is in the hearing process (the deadline is Aug. 15). There are many opposed voices in the Chinese society. Please help us to convince the government to pass this policy and other related policies!

From 1990s to present, kids who are carrier are disenfranchised the right of entering kindergartens. They have no friends to play with, they cannot receive preschool education and they are labeled as “infection patients”. You can image that almost every kid in this situation has more or less psychological health problem. Please help these disadvantaged children and their heart-broken mothers.

According to professional theories, people may be infected Hepatitis B by three methods: blood-borne transmission, sexually transmission, and maternal-neonatal transmission. The healthy virus carriers have no hazards to the public. However, because of misunderstandings and some policies, the Hepatitis B carriers are discriminated and nearly abandoned by the whole society.

Fortunately, Chinese government already realized this issue and began to modify some related policies and laws step by step. However, the most critical policies and laws are still in the pending status. Please share your professional thoughts of how to treat people with disease equally. Please help us to get more support from international experts of infectious disease or gastroenterology. We do need your professional knowledge to help us convince the Chinese society.

Hepatitis B discrimination in China is so critical that following population groups need your help.

Pregnant women and newborns: Most carrier pregnant women are forced to deliver babies in infection hospitals which means the babies’ birth certificates are marked “born in infection hospital”. These cute babies have to carry this burden for the whole life no matter he/she is Hepatitis B carrier or not, just because their mothers are virus carriers. They are labeled since born. We admit that some pregnant women need to deliver babies in infection hospitals because their health condition, but for healthy carriers, please do not force them!

Preschool children: About 90-95% babies of carrier mothers are lucky to avoid infected Hepatitis B by shooting vaccines. However, there is still 5-10% babies become Hepatitis B carriers. As mentioned above, no kindergarten accepts them. Discrimination, aloneness, depression and other negative influences accompany with them since about 2 years old and last for their whole lives. Please give them a chance to play and learn in kindergartners like other kids!

Students in elementary schools, junior/senior high schools: Most schools accept carrier students, but there are still some schools refuse to accept carrier students or force carriers to drop off schools!

Students in higher education areas: Carrier students have fewer boundaries to apply undergraduate programs than to apply graduate programs. There are quite a lot of graduate schools refuse to admit carriers no matter how outstanding the students are. Please help them to realize their dreams!

Young people in job markets: Experiencing all challenges above, these carriers eventually graduate and begin to look for jobs. They can pass several competitive interviews, but there are shoot down by blood test. No offers, no future, no hope. Please give them work opportunities. They need to live!

You may wonder that health history should be personal privacy. Technically, you are right. Medical history should not be disclosed to anyone unless the person him/herself agree. But, Hepatitis B carriers in China have not any privacy. We are labeled, we are discriminated, and we need your help!!!

Below are some links relevant to Hepatitis B discrimination. These articles are only a tiny part of an iceberg. Most of articles talk about suicide caused by discrimination. I did not select articles related to depression, anxiety and other negative experience because there are too many. I am sorry that all articles are in Chinese. If you need, I could translate some of them.

Again, appreciate for your great help in advance! We cordially turn to your for help. Please use your expertise, no matter in which field, to help us.



Best Regards

An carrier  

************************************************************

Hepatitis B Discrimination Report http://www.hbver.com/Article/ygqs/ygqs/200908/6649.html

Some carrier mothers’ experience: no kindergarten accepts their kids. All mothers are suffering blame from family members, discrimination from society and guilty when they face their kids. A mother even killed her son and then committed suicide in 2008. http://www.chinaedunet.com/yejy/ ... ontent_169989.shtml (May, 2009)

Zhou Yichao’s story: Zhou was an outstanding and sunshine young man. After graduated from a famous university, he passed all interviews in local government recruitment. However, because he was a carrier, he was rejected. He killed two HR persons and then waited for arrest. Zhou was executed for voluntary manslaughter. He was the only child of a widow and was only 22 years old at that time.  http://www.people.com.cn/GB/shehui/1063/2692956.html (Jan. 2003)

Lei Chuang’s story: Lei was rejected by a graduate school of Chinese Academy of Science (CAS) because he is a carrier. He wrote letters to 500 academicians and asked them for help. Finally, although the CAS didn’t admit him, he was admitted by another graduate school. http://www.china.com.cn/city/txt/2008-10/22/content_16647727.htm (Sep. 2008)

A 18 years old young man committed suicide because of Hepatitis B discrimination http://bbs.66wz.com/viewthread.php?tid=189862  (Jul. 2006)

A young female carrier committed suicide because she was fired by a company and cannot found other jobs http://www.people.com.cn/GB/shehui/47/20020411/707346.html (Mar. 2000)

A 16 years old student was forced to drop of school because he is a carrier. http://news.dayoo.com/society/57401/200904/15/57401_5694601.htm (Apr. 2009)

A Ph. D student committed suicide because he was a carrier. http://news.qq.com/a/20050213/000031.htm (Feb. 2005)

A 32 years old young man committed suicide by burning himself because of Hepatitis B discrimination http://www.qingdaonews.com/content/2007-02/16/content_7728065.htm  (Feb. 2007)
淡定。。
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