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肝胆相照论坛 论坛 乙肝病毒携带者维权 一个美国研究机构的回复!(有中文翻译) ...
楼主: 受治疗的鱼
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一个美国研究机构的回复!(有中文翻译) [复制链接]

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

11
发表于 2009-8-9 02:06 |只看该作者
我看到这篇文章了!!!

http://www.heart-intl.net/HEART/030109/ALetterFromChina.htm

Critical time! Hepatitis B discrimination in China
淡定。。

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

12
发表于 2009-8-9 02:10 |只看该作者
http://www.heart-intl.net/HEART/Internat/China/index.htm

这一页基本是中国HIV的事情,但是第一次出现B型肝炎的内容

顶端:
To view a letter from people living in China with Hepatitis B click Here
淡定。。

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风雨同舟

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发表于 2009-8-9 02:16 |只看该作者
版主太强了!后续跟进工作做得好!!!让大家看看我们的努力是有反应的。

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

14
发表于 2009-8-9 02:21 |只看该作者
原帖由 受治疗的鱼 于 2009-8-9 02:16 发表
版主太强了!后续跟进工作做得好!!!让大家看看我们的努力是有反应的。


淡定。。

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版主勋章 勤于助新 携手同心 文思泉涌 锄草勋章

15
发表于 2009-8-9 06:35 |只看该作者
Hepatitis: What you should know

When reading a story about distress, some are moved by emotion, others are affected by numbers; whereas, many are indifferent to both. For example, in a newspaper, we can read about a plane crash and be saddened. We can actually see a vivid picture of the carnage, and be horrified. The unfortunate reality is that, we forget the subject within five minutes. With medical news, there is a tendency to distance ourselves from the subject because of fear. “If I do not know about it, it won’t hurt me.” Ignoring or failing to address the condition makes it worse for everyone.


Hepatitis is a little-publicized group of diseases, with Hepatitis B and C virus strains being the most destructive. In particular, the Hepatitis B virus (HBV) affects more that 400 million people worldwide (that is almost more than the population of Canada, the United States, and Mexico put together). It can be transmitted through DNA, blood-transfusion and other means. The illness can bring death through liver failure or liver cancer in a significant number of cases (An estimated 1 million people die each year from HBV and its complications, that is about two deaths each minute worldwide.)

The human cost is staggering. In China, if a child is born with HBV, he can expect a lifetime of misery. Before the child is even in kindergarten, he must submit to a government-sponsored, mandatory, non-confidential blood test. As soon as the result shows he has HBV, he is usually barred from the local school, with no possible means of appeal. The problem gets worse when the sufferer is forced to take another blood test as a condition to get into university. Again, the test is not confidential; therefore, anyone connected with the school can know the sufferer’s results. This encourages various departments to discriminate, and not allow the student to enter his chosen program. In some extreme cases, the university’s officers publicly throw the sufferer’s belongings off the campus. Assuming the sufferer surmounts the previous obstacles, he now is subject to the discrimination (both overt and covert) of the work sector. The blood test is public knowledge, therefore; because of the large stigma attached, employment opportunities are scarce. The scenario is worse in the public-sector. To compound the problem, most foreign multinational companies operating in China are given government consent to administer their own blood tests.

The reaction of society is always that of fear and intolerance. If a man wants to marry, and the girl’s family hears about his HBV, they frequently fight to stop the marriage.

Further, an individual wanting to migrate to a more advantageous city, needs to secure a permit, and this is dependent upon having a negative HBV result.

HBV envelops every part of the sufferer’s life. Everyday is a challenge. The sufferer has to constantly fight against depression and hopelessness. When he is a child, he feels he is different, unwanted and alone. The school does not want him, some parents keep their children away from him, and he learns to be secretive. The same happens in the university and workforce, making each day panic-ridden. Relationships are difficult to keep, and questions are frequently asked: The sufferer feels that everybody has the right to their own life except for him. His enemy is not the disease—it is human ignorance.

The cure for this disease might be years away, but the immediate relief can come from compassion, tolerance and understanding.

我有一篇基本情况介绍的英文文稿,请了大学里教文学的给润色的。我过去曾转发给很多媒体。可以用这个做基本背景情况介绍。

[ 本帖最后由 特深沉 于 2009-8-9 07:09 编辑 ]
未成小隐聊中隐,可得长闲胜暂闲。
我本无家更安往,故乡无此好湖山。

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风雨同舟 大财主勋章

16
发表于 2009-8-9 07:08 |只看该作者
其他会英语的战友,站出来一起发吧
原来你们的老师就是一个卖包子的!

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17
发表于 2009-8-9 07:48 |只看该作者
lz辛苦了,支持你,可惜我外语不好

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18
发表于 2009-8-9 08:03 |只看该作者
把国内的情况告诉国外的组织和媒体是好的,我们只要客观地说出我们的遭遇。
世界都知道了,政府也会知道的。
组织下吧,我会参与这个工作。
但要组织好,希望有时间,有能力的人出来把领导的工作做好。

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版主勋章 勤于助新 携手同心 文思泉涌 锄草勋章

19
发表于 2009-8-9 08:10 |只看该作者
原帖由 T~t 于 2009-8-9 08:03 发表
把国内的情况告诉国外的组织和媒体是好的,我们只要客观地说出我们的遭遇。
世界都知道了,政府也会知道的。
组织下吧,我会参与这个工作。
但要组织好,希望有时间,有能力的人出来把领导的工作做好。 ...

否。目前只能指望人自为战。乱棍打死老师傅。
当局是很忌讳我们鉏枳起来的。也不应该指望别人。
未成小隐聊中隐,可得长闲胜暂闲。
我本无家更安往,故乡无此好湖山。

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20
发表于 2009-8-9 08:12 |只看该作者
是啊,说不定今年国外的人权报告会谈及我们的生存情况

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