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世界肝炎联盟将设立博客（英文），有意参与的战友可以和世界肝炎联盟联系。
世界肝炎联盟的启事如下：
The World Hepatitis Alliance encourages you to help support the launch of the new World Hepatitis Day website and blog
The World Hepatitis Alliance is launching a new global website and blog to promote the ‘This is hepatitis…’ campaign ahead of World Hepatitis Day 2010. The ‘This is hepatitis…’ campaign is designed to tell the real-life stories of the effect that hepatitis B and C have on the lives of the 500 million people affected worldwide. ‘This is hepatitis…’ will focus on the physical and emotional impact of viral hepatitis, but also aims to empower those living with the diseases through the sharing of motivational stories. The World Hepatitis Alliance has launched the campaign to generate increased understanding and to help destigmatise two diseases that kill over one million people every year.
The new website will feature new and updated content as well as offer users interactive community tools, including the ‘This is hepatitis…’ blog. The blog aims to provide a forum in which people around the world can come together and talk about their experiences of viral hepatitis.
As part of the new blog we will be providing 12 people from 12 different countries a unique chance to tell their personal story through the launch of their own blog on the global World Hepatitis Alliance website. This is a great opportunity for someone with a personal experience of viral hepatitis to help educate people on what it means to live with hepatitis B and C, and to help change the way people think about the diseases. For those taking part we hope that it will be a positive experience and through educating visitors to the site, the participants will help increase awareness, improve understanding and empower patients to speak out about their own experiences and to play a vital role in educating and supporting others.
Participants will have a dedicated personal blog through which they can regularly post stories and information in their own language about relevant and interesting issues on viral hepatitis. Topics will be wide ranging and will include anything from personal experiences of living with viral hepatitis to thoughts on how people can make a difference in educating and supporting others.
We are now at the stage of recruiting the 12 bloggers and this is where we need your support! Through your organisation’s membership and contacts if you feel there may be someone who would be appropriate and interested in becoming a blogger on the new World Hepatitis Alliance website then please forward the attached application form to them. We will be reviewing all completed application forms during December with a view to making a final selection in early January 2010.
In addition to the blog, to help present the many varied faces and real-life stories of viral hepatitis we are also looking to feature personal stories and photographs (this is optional) of people living with these diseases and/or who are indirectly affected, such as friends and family members, on the new global website. This might be of interest to someone who does not have the time to blog regularly but still wants to tell their story. Also, unlike the blog, this can be done anonymously. So again, if you know anyone who would be interested in taking part, please contact them about this and, if they would like to proceed, ask for them to contact the World Hepatitis Alliance directly via [email protected].
We greatly appreciate your continued help and support for World Hepatitis Day.
World Hepatitis Alliance Board
President
Charles Gore
The Hepatitis C Trust
(UK)
[email protected]
Australasia region
Helen Tyrrell
Hepatitis Australia
(Australia)
[email protected]
Latin America region
Raquel José
Non-Executive and Interim
World Hepatitis Alliance
[email protected]
Eastern Med/Africa region
Abdelhamid Bouallag
SOS Hépatites
(Algeria)
[email protected]
Europe region
Achim Kautz
Deutsche Leberhilfe (Germany)
[email protected]
North America region
Chris Taylor
NASTAD
(USA)
[email protected]
Western Pacific region
Zhao Wang
Chinese Foundation for Hepatitis Prevention and Control
(China)
[email protected]
______________________________________________________________________
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发表于 2009-12-20 22:49
