Emails & Answers

liver411

Liu Jian:



Your history well illustrates the pitfalls in

consulting a doctor who has inadequate knowledge

about Hep B probably because he doesnt see the

disease often.



There is no HBV infected person who is a "healthy

carrier" , you may be symptom free but still have

liver disease.

You do not seem to have active HBV infection right

now but you should have ALT,HBV-DNA and

alphafetoprotein done.

You and your entire family should have a full work

up on HBV from a doc who treats Hep B .Your family

history indicates transmission of HBV at birth and

makes you more at risk for liver cancer.



Hope this helps.



Dr Sharat C Misra MD,DM

















> Dear all,

>

> I am new to the list. It is very lucky for me to

find this list. I found

> people on this list are very knowledgeable and

willing to help. I have

> learned a lot since I joined it. I really want

to thank to all of you.

> I was diagnosed as HVB carrier in 1997. My

doctor (internal specialist) had

> subscribed me with several blood tests and liver

biopsy. My doctor said I am

> a HBV carrier and probably got it from my mother

at birth. I was told no

> need for treatment as there was no infection in

my lever. The doctor also

> informed me that I have some kind of immunity

and would not develop liver

> cancer and would live in a normal life time (ago

of 60). I have also no need

> to do regular follow-up tests. When I disagreed

with my doctor's findings

> and insisted to get regular checks and treatment

for the HBV virus, my

> doctor consulted the top liver specialist in the

country (Netherlands where

> I live since 1992) and confirmed his diagnose on

my HBV. Since I was

> dismissed by my doctor in 1998, I haven't take

any test except once when I

> travelled back to China in 1999.

>

> I come from a family with HVB history. My mother

is chronic Hep B for about

> 30 years until she died of necrosis at ago of

60. My two sisters were

> diagnosed with HVB in their early 30s. One of my

sisters, like Sharee's

> brother, had been diagnosed with HBV and end

stage liver cancer just three

> months before she died of liver cancer (my

mother died one year after my

> sister's death). My other sister has suffered

HBV since my mother and sister

> died. I don't know exactly her condition, but

only know she is weak and

> complains frequent liver pain. It is shame that

despite my family history of

> HVB, the whole family know little about this

disease. My sister just takes

> medicine from my mother and frequently try

medicines from friends and

> relatives without doctor's supervision. I almost

bought medicines I saw from

> a newspaper advertisement in Hong Kong not long

ago. When I try to verify

> this medicine from internet I found this list.

After following the list, now

> I understand it is dangerous to take medications

without guidelines from

> doctors. Unfortunately my sister doesn't

understand English nor use

> internet. I hope that with knowledge I learned

from this list and advance

> from the list members, I will be able to help my

sister.

> I still do not completely believe what my doctor

diagnosed on my HBV status

> in 1997/98. Is it true that I have HBV immunity

as a HBV carrier? I have

> only one test results done in 1999 which reads

as follows:

> HbsAg: positive

> Anti-HBs: negative

> HbeAg: negative

> Anti-Hbe: negativ

> Anti-HBc: positive

>

> I have visited a traditional Chinese doctor in a

costal town when I toured

> there last year, at recommendation of my friend

and tour guide. The doctor

> said only I could survive of liver disease in my

family but my other two

> sisters would not. I have suggested my sister to

visit the doctor after my

> tour, but now I am not sure whether it is right

for her. From the limited

> knowledge I learned so far, I think it is not

good for her to try various

> medicines all the time. I have learned that only

Interferon and Lamivudine

> are approved for treatment of chronic HBV.

> I appreciate any advice or suggestion.

> Best wishes for everybody,

> Liu Jian

>

>

>

>

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