Emails & Answers

liver411

Hello Liu Jian,



Welcome to the list!  Glad that you found and joined us!



WOW, what a strong and worrisome family history you have!  Given the family

history AND you are still surface antigen positive, you bear careful

monitoring throughout your lifetime!  At a minimum, you should have: ALT,

AST, bilirubin, albumin, PTT, AFP lab tests at least every six  months along

with at least a yearly ultrasound.  Just because you have lost the e

antigen, you are not out of the woods.  Your e antibody is still negative

too.  Those of us who are "just surface antigen positive" are rarely taken

seriously by an uninformed doctor.  Insist on having the above tests done!

As for you having "immunity", the only thing I could take from that

statement is the fact that you can't get Hep B, YOU ALREADY have it!



As for your sister who takes your mother's and friends meds, SMACK her!

<grin>  That is a major no-no!  She is probably doing her liver and her body

much more harm than good!!

Hugs,

Sheree

----- Original Message -----

From: "Jian Liu" <[email protected]>



Dear all,



I am new to the list. It is very lucky for me to find this list. I found

people on this list are very knowledgeable and willing to help. I have

learned a lot since I joined it. I really want to thank to all of you.

I was diagnosed as HVB carrier in 1997. My doctor (internal specialist) had

subscribed me with several blood tests and liver biopsy. My doctor said I am

a HBV carrier and probably got it from my mother at birth. I was told no

need for treatment as there was no infection in my lever. The doctor also

informed me that I have some kind of immunity and would not develop liver

cancer and would live in a normal life time (ago of 60). I have also no need

to do regular follow-up tests. When I disagreed with my doctor's findings

and insisted to get regular checks and treatment for the HBV virus, my

doctor consulted the top liver specialist in the country (Netherlands where

I live since 1992) and confirmed his diagnose on my HBV. Since I was

dismissed by my doctor in 1998, I haven't take any test except once when I

travelled back to China in 1999.



I come from a family with HVB history. My mother is chronic Hep B for about

30 years until she died of necrosis at ago of 60. My two sisters were

diagnosed with HVB in their early 30s. One of my sisters, like Sharee's

brother, had been diagnosed with HBV and end stage liver cancer just three

months before she died of liver cancer (my mother died one year after my

sister's death). My other sister has suffered HBV since my mother and sister

died. I don't know exactly her condition, but only know she is weak and

complains frequent liver pain. It is shame that despite my family history of

HVB, the whole family know little about this disease. My sister just takes

medicine from my mother and frequently try  medicines from friends and

relatives without doctor's supervision. I almost bought medicines I saw from

a newspaper advertisement in Hong Kong not long ago. When I try to verify

this medicine from internet I found this list. After following the list, now

I understand it is dangerous to take medications without guidelines from

doctors. Unfortunately my sister doesn't understand English nor use

internet. I hope that with knowledge I learned from this list and advance

from the list members, I will be able to help my sister.

I still do not completely believe what my doctor diagnosed on my HBV status

in 1997/98. Is it true that I have HBV immunity as a HBV carrier? I have

only one test results done in 1999 which reads as follows:

HbsAg: positive

Anti-HBs: negative

HbeAg: negative

Anti-Hbe: negativ

Anti-HBc: positive



I have visited a traditional Chinese doctor in a costal town when I toured

there last year, at recommendation of my friend and tour guide. The doctor

said only I could survive of liver disease in my family but my other two

sisters would not. I have suggested my sister to visit the doctor after my

tour, but now I am not sure whether it is right for her. From the limited

knowledge I learned so far, I think it is not good for her to try various

medicines all the time. I have learned that only Interferon and Lamivudine

are approved for treatment of chronic HBV.

I appreciate any advice or suggestion.

Best wishes for everybody,

Liu Jian









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