自我的丧失与回归：中国慢性乙型肝炎应对与康复的解释性

StephenW

自我的丧失与回归：中国慢性乙型肝炎应对与康复的解释性现象学分析
侯礼奇 1 , 张亚农 2 3 , 宿勤堂 4 , 新丰堂 5
隶属关系
隶属关系

    1
    北京大学社会学系，北京，中国。
    2
    复旦大学新闻学院，上海，中国。
    3
    香港城市大学传媒与传播学系，香港特别行政区。
    4
    深圳大学心理学院，中国深圳。
    5
    中国人民大学心理学系，北京，中国。

    PMID：35670524 DOI：10.1111/nhs.12963

抽象的

慢性乙型肝炎 (CHB) 是一种具有多种负面后果的流行疾病。本研究探讨了一名慢性乙型肝炎患者应对和康复的生活经验。对一名从慢性乙型肝炎康复十年的参与者进行了半结构化访谈。使用解释性现象学分析分析数据。出现了五个上位主题，包括在死亡焦虑的阴影下徘徊，自我功能减弱，采用高度自律的生活方式，接受社会支持，以及带着伤痕的自我回归。研究结果表明，这种疾病与道德地位密切相关，这意味着慢性乙型肝炎的诊断可能意味着患有这种疾病的中国人失去了道德面子。我们的研究结果表明需要增加对 CHB 的了解，从道德的角度将疾病与疾病脱钩，并提供支持性环境。

关键词：中国；慢性乙型肝炎；应对；解释性现象学分析；生活经验。

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StephenW

The loss and return of self: An interpretative phenomenological analysis of coping and recovery from chronic hepatitis B in China
Liqi Hou  1 , Yanong Zhang  2   3 , Suqin Tang  4 , Xinfeng Tang  5
Affiliations
Affiliations

    1
    Department of Sociology, Peking University, Beijing, China.
    2
    School of Journalism, Fudan University, Shanghai, China.
    3
    Department of Media and Communication, City University of Hong Kong, Hong Kong SAR.
    4
    School of Psychology, Shenzhen University, Shenzhen, China.
    5
    Department of Psychology, Renmin University of China, Beijing, China.

    PMID: 35670524 DOI: 10.1111/nhs.12963

Abstract

Chronic hepatitis B (CHB) is a prevalent disease with various negative consequences. The lived experience of coping and recovery of a patient with CHB was explored in this study. A semi-structured interview was conducted with one participant who had been recovered from CHB for ten years. Data were analyzed using interpretative phenomenological analysis. Five super-ordinate themes emerged, including lingering in the shadow of death anxiety, diminished functioning of the self, adopting a highly disciplined lifestyle, receiving social support, and the return of the self with scars. The findings revealed that the disease is deeply associated with moral standing, which means the diagnosis of CHB might imply a loss of moral face for Chinese people living with the condition. Our findings point to the need for increasing knowledge about CHB, decoupling the disease from a moral standpoint, and providing a supportive environment.

Keywords: China; chronic hepatitis B; coping; interpretative phenomenological analysis; lived experience.

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