中国北京的慢性感染患者和未感染者的乙型肝炎知识和污名

StephenW

Survey of hepatitis B knowledge and stigma among chronically infected patients and uninfected persons in Beijing, China
Authors

    First published: 12 June 2016Full publication history
    DOI: 10.1111/liv.13168View/save citation
    Cited by: 0 articles



    Handling Editor: Vincent Wong
    See Editorial on Page 1582

Abstract
Background & Aims

Hepatitis B virus (HBV) infection carries substantial stigma in China. We surveyed HBV knowledge and stigma among chronic hepatitis B (CHB) patients and persons without HBV infection in Beijing, China.
Methods

Four hundred and thirty five CHB patients and 801 controls at Peking University People's Hospital were surveyed.
Results

Chronic hepatitis B patients were older (mean 46 vs. 39 years) and more often men (71 vs. 48%) than controls. Mean knowledge score was 11.9/15 for CHB and 9.3/15 for control patients (P < 0.001). Average stigma score was 22.1/39 for CHB and 19.2/30 for control patients. Controls expressed discomfort with close contact (45%) or sharing meals with CHB patients (39%) and believed CHB patients should not be allowed to work in restaurants (58%) or childcare (44%). Chronic hepatitis B patients felt that they were undesirable as spouses (33 vs. 17%) and brought trouble to their families (58 vs. 34%) more often than controls. Despite legal prohibitions, 40% of CHB patients were required to undergo pre-employment HBV testing, and 29% of these individuals thought that they lost job opportunities because of their disease status. 16% of CHB patients regretted disclosing their HBV status and disclosure was inversely associated with stigma. Higher stigma was associated with older age, lower education and lower knowledge score among controls; and with lower education, younger age, having undergone pre-employment HBV testing and regret disclosing their HBV status among CHB patients.
Conclusion

Despite high prevalence of CHB in China, our study shows knowledge is limited and there is significant societal and internalized stigma associated with HBV infection.

StephenW

中国北京的慢性感染患者和未感染者的乙型肝炎知识和污名调查
作者

    首次发布：2016年6月12日完整的出版历史
    DOI：10.1111 / liv.13168查看/保存引文
    引用：0文章



    处理编辑：Vincent Wong
    见第1582页的编辑

抽象
背景与目的

乙型肝炎病毒（HBV）感染在中国有严重的污名。我们调查了中国北京慢性乙型肝炎（CHB）患者和无HBV感染者的HBV知识和污名。
方法

调查了北京大学人民医院的441名CHB患者和801名对照者。
结果

慢性乙型肝炎患者比对照组年龄更大（平均46岁vs 39岁），更常见的是男性（71比48％）。平均知识得分为CHB为11.9 / 15，对照组为9.3 / 15（P <0.001）。 CHB平均柱状病分数为22.1 / 39，对照组为19.2 / 30。控件表示不舒服与密切接触（45％）或与CHB患者（39％）分享膳食，并认为CHB患者不应允许在餐馆工作（58％）或儿童保育（44％）。慢性乙型肝炎患者认为他们作为配偶是不受欢迎的（33对17％），并给他们的家庭带来麻烦（58对34％）比对照更频繁。尽管法律禁止，40％的CHB患者需要进行就业前HBV检测，其中29％认为他们因为疾病状况而失去了工作机会。 16％的CHB患者遗憾地公开他们的HBV状态和公开与耻辱负相关。更高的污名与年龄较大，教育程度较低和控制中的知识得分较低有关;教育程度较低，年龄较小，经过就业前HBV检测，遗憾地公布了CHB患者的HBV状态。
结论

尽管CHB在中国的高发病率，我们的研究显示知识有限，并有与HBV感染相关的重大社会和内化的污名。