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- 2022-12-28
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The Hepatitis B Foundation will be hosting a Parent Patient Conference for
those living with children with HBV. It will be all day, Saturday, May
19th in Philadelphia. Parents could arrive on Friday and leave either
Saturday night or Sunday. Although many of the details have not been
nailed-down, I can tell you that Dr. Barbara Haber (Philadelphia) and Dr.
Karen Murray (Seattle) have both committed to speak at the conference. Both
are leading-edge pediatric liver specialists in the country. This is also
a wonderful opportunity for parents to meet face-to-face with friends they
may have met on-line, and other families dealing with HBV issues and kids.
HBF will also be reaching out to the local API community to see if families
may be interested in attending. If you know of a family with a child with
HBV that is not on this list or the HBV adoption list, please forward this
information their way. Although the details are still being worked out,
HBF wanted to give families a heads-up so they could save the date in their
calendars and start looking for reasonable flights, if necessary. Stay
tuned! I'll update you with the latest info as it is confirmed. Please be
sure to contact me if you have any questions.
Thanks,
Maureen
[email protected]
乙型肝炎基金会将举办家长病人会议
那些与乙肝病毒的儿童的生活。这将是一整天,周六,五月
19日在费城。家长可以到达上周五离开要么
周六晚上或周日。虽然很多细节尚未
钉下,我可以告诉你,芭芭拉哈伯博士(费城)和博士
卡伦穆雷(西雅图)都致力于在会议上发言。两种
是在全国领先的小儿肝专家。这也是
为父母的绝好机会,以满足与朋友面对面
可能已经达到上线,并处理与HBV的问题和孩子的其他家庭。
HBF也将是深远的本地API社区看到,如果家庭
可能有兴趣参加。如果你知道一个孩子的家庭
乙肝病毒不在此列表或乙肝病毒通过列表,请转发
信息的方式。尽管细节仍在摸索出,
HBF想给家人元首,这样他们就可以保存在他们的日期
日历,并开始寻找合理的航班,如果有必要的。保持
关注!我会更新的最新信息,因为它是证实。请
一定要与我联系,如果您有任何疑问。
谢谢,
莫林
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