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肝胆相照论坛 论坛 乙肝病毒携带者维权 20090807 乙肝权益 进入第二阶段:主动出击 ...
楼主: 奔跑者
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20090807 乙肝权益 进入第二阶段:主动出击 [复制链接]

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71
发表于 2009-8-8 18:10 |只看该作者
继续加油!直到取得胜利

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72
发表于 2009-8-8 20:49 |只看该作者

支持楼主。

维权到了最关键时刻。
楼主幸苦了。
如果我们自己不善待自己,世上就没有人会善待我们了,如果我们自己悲观消沉,失败者的帽子就一生一世扣在我们头上…

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73
发表于 2009-8-9 00:28 |只看该作者

对卫生部的“否认门”很失望

相当失望,失望。。。。。

Rank: 3Rank: 3

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74
发表于 2009-8-9 01:53 |只看该作者
看来只能是自我救赎了
靠别人不如靠自己

Rank: 9Rank: 9Rank: 9

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

75
发表于 2009-8-9 02:26 |只看该作者
受治疗的鱼战友发的贴:

http://www.hbvhbv.com/forum/view ... &extra=page%3D1

一个美国研究机构的回复!(有中文翻译)
On Sat, Aug 8, 2009 at 6:49 AM, Hepatitis, AIDS, Research Trust <[email protected]> wrote: 8月8日 肝炎,艾滋病 委托研究会

What I can do is to post this letter to the website www.heart-intl.net and www.hateamongstus.net
The HEART site has had almost 12 million visitors in the last 12 months-the world will know what is happening
我可以做的是,把这个信发表在www.heart-intl.net 和 www.hateamongstus网站上。这两个网站在过去12个月有将近1千2百万的访客。世界将会知道正在发生什么。
I will also pass this letter on to the other board members for their input
我还将把这个信转给董事会成员,让他们给出建议。
Please keep us informed and hopefully this will help in the short term
请和我们保持联系,并且希望能够在短期内带来帮助

James Hoyt
淡定。。

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管理员或超版 荣誉之星 勤于助新 一品御批懒惰勋章 神仙眷侣 龙的传人 旺旺勋章 色狼勋章 京津冀运动 双子座 幸福风车

76
发表于 2009-8-9 02:26 |只看该作者

帖子如下

http://www.heart-intl.net/HEART/030109/ALetterFromChina.htm

Critical time! Hepatitis B discrimination in China

Dear Madam/Sir,

I am a Chinese Hepatitis B virus carrier. I on behalf of 130 million Chinese Hepatitis B virus carriers turn to you for help.

Hepatitis B discrimination in China is very serious. The Chinese government is planning to enact a policy to permit kids who carry Hepatitis B virus to enter kindergartens. This policy is in the hearing process (the deadline is Aug. 15). There are many opposed voices in the Chinese society. Please help us to convince the government to pass this policy and other related policies!

From 1990s to present, kids who are carrier are disenfranchised the right of entering kindergartens. They have no friends to play with, they cannot receive preschool education and they are labeled as “infection patients”. You can image that almost every kid in this situation has more or less psychological health problem. Please help these disadvantaged children and their heart-broken mothers.

According to professional theories, people may be infected Hepatitis B by three methods: blood-borne transmission, sexually transmission, and maternal-neonatal transmission. The healthy virus carriers have no hazards to the public. However, because of misunderstandings and some policies, the Hepatitis B carriers are discriminated and nearly abandoned by the whole society.

Fortunately, Chinese government already realized this issue and began to modify some related policies and laws step by step. However, the most critical policies and laws are still in the pending status. Please share your professional thoughts of how to treat people with disease equally. Please help us to get more support from international experts of infectious disease or gastroenterology. We do need your professional knowledge to help us convince the Chinese society.

Hepatitis B discrimination in China is so critical that following population groups need your help.

Pregnant women and newborns: Most carrier pregnant women are forced to deliver babies in infection hospitals which means the babies’ birth certificates are marked “born in infection hospital”. These cute babies have to carry this burden for the whole life no matter he/she is Hepatitis B carrier or not, just because their mothers are virus carriers. They are labeled since born. We admit that some pregnant women need to deliver babies in infection hospitals because their health condition, but for healthy carriers, please do not force them!

Preschool children: About 90-95% babies of carrier mothers are lucky to avoid infected Hepatitis B by shooting vaccines. However, there is still 5-10% babies become Hepatitis B carriers. As mentioned above, no kindergarten accepts them. Discrimination, aloneness, depression and other negative influences accompany with them since about 2 years old and last for their whole lives. Please give them a chance to play and learn in kindergartners like other kids!

Students in elementary schools, junior/senior high schools: Most schools accept carrier students, but there are still some schools refuse to accept carrier students or force carriers to drop off schools!

Students in higher education areas: Carrier students have fewer boundaries to apply undergraduate programs than to apply graduate programs. There are quite a lot of graduate schools refuse to admit carriers no matter how outstanding the students are. Please help them to realize their dreams!

Young people in job markets: Experiencing all challenges above, these carriers eventually graduate and begin to look for jobs. They can pass several competitive interviews, but there are shoot down by blood test. No offers, no future, no hope. Please give them work opportunities. They need to live!

You may wonder that health history should be personal privacy. Technically, you are right. Medical history should not be disclosed to anyone unless the person him/herself agree. But, Hepatitis B carriers in China have not any privacy. We are labeled, we are discriminated, and we need your help!!!

Below are some links relevant to Hepatitis B discrimination. These articles are only a tiny part of an iceberg. Most of articles talk about suicide caused by discrimination. I did not select articles related to depression, anxiety and other negative experience because there are too many. I am sorry that all articles are in Chinese. If you need, I could translate some of them.

Again, appreciate for your great help in advance! We cordially turn to your for help. Please use your expertise, no matter in which field, to help us.



Best Regards

An carrier  

************************************************************

Hepatitis B Discrimination Report http://www.hbver.com/Article/ygqs/ygqs/200908/6649.html

Some carrier mothers’ experience: no kindergarten accepts their kids. All mothers are suffering blame from family members, discrimination from society and guilty when they face their kids. A mother even killed her son and then committed suicide in 2008. http://www.chinaedunet.com/yejy/ ... ontent_169989.shtml (May, 2009)

Zhou Yichao’s story: Zhou was an outstanding and sunshine young man. After graduated from a famous university, he passed all interviews in local government recruitment. However, because he was a carrier, he was rejected. He killed two HR persons and then waited for arrest. Zhou was executed for voluntary manslaughter. He was the only child of a widow and was only 22 years old at that time.  http://www.people.com.cn/GB/shehui/1063/2692956.html (Jan. 2003)

Lei Chuang’s story: Lei was rejected by a graduate school of Chinese Academy of Science (CAS) because he is a carrier. He wrote letters to 500 academicians and asked them for help. Finally, although the CAS didn’t admit him, he was admitted by another graduate school. http://www.china.com.cn/city/txt/2008-10/22/content_16647727.htm (Sep. 2008)

A 18 years old young man committed suicide because of Hepatitis B discrimination http://bbs.66wz.com/viewthread.php?tid=189862  (Jul. 2006)

A young female carrier committed suicide because she was fired by a company and cannot found other jobs http://www.people.com.cn/GB/shehui/47/20020411/707346.html (Mar. 2000)

A 16 years old student was forced to drop of school because he is a carrier. http://news.dayoo.com/society/57401/200904/15/57401_5694601.htm (Apr. 2009)

A Ph. D student committed suicide because he was a carrier. http://news.qq.com/a/20050213/000031.htm (Feb. 2005)

A 32 years old young man committed suicide by burning himself because of Hepatitis B discrimination http://www.qingdaonews.com/content/2007-02/16/content_7728065.htm  (Feb. 2007)
淡定。。

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77
发表于 2009-8-9 18:58 |只看该作者
只有六天时间!!!!!!!
当前反映幼儿入托取消乙肝指标检测是我们论坛、战友最急切的任务!!!
我们的年轻战友们,不用几年你们就要生孩子!就要让孩子入托入幼!!!
赶快行动吧!!!

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78
发表于 2009-8-9 21:10 |只看该作者

强烈要求消除乙肝歧视

强烈要求消除乙肝歧视。我们也是人,是一样的公民,中国有将公民分为三六九等吗?为什么乙肝携带者早早地被剥夺受教育的权利?连入托也不行?看看,世界上哪个国家与地区还有这等怪事?

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79
发表于 2009-8-9 21:24 |只看该作者
我们只有团结一致,跟着大家走!!!!!!!!!!

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80
发表于 2009-8-10 19:42 |只看该作者
渴望胜利的那天早日到来,再也不用成天提心吊胆地过着了,心惊胆战的
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